What do you do when the system fails you.
I Need Your Help!
Winter Woods - Emergency Health Update
Hello Everyone,
This is a personal blog and a plea which has been a long while coming. Since March 16th of 2026 my life has been completely turned upside down - as many of you know. A neurological problem which is highly suspected by two different medical departments to be a vary rare neurological condition has plagued me with no end in sight. But yet, as of today July 16th, five months in to it, I am still undiagnosed and without preventative treatment.
I have spent hours, weeks, months even; battling with the NHS, pleading with them to just diagnose me and begging for help because it is actively and quite thoroughly - ruining my life.
Yet, they still are unable to offer anything. No diagnosis, no advice, no guidance, no information and no actual help in any regard. I know and understand that the NHS is crippled, and I also understand how it came to be this way. However, the impact this is having on my life is extreme and I am at breaking point with the only path forward that ends this in any positive way quickly - is to go private.
You have seen but a small fraction of the pressure, stress and torture this has been and the toll it’s taken on me both emotionally and physically. I am at breaking point with it, having to manage a condition I only know about from googling it myself, with zero help, guidance, advice or care from the health service. They have told me today that I need an EEG next before I can be diagnosed and that the EEG wait time is approximately a year from today. By that point I’ll have been managing this condition blind and completely alone for almost 18 months. A condition that causes seizures, paralysis, vision issues, immense headaches, confusion, brain fog, communication issues, and with all the appearance of having a stroke - leaving my face, which is highly important to my work (and my confidence) half drooped and stuck like that for weeks at a time.
I have reached a point where the financial stress it has put me under is wearing me so thin I feel as if I will crumble under the weight of it - into nothing but dust if this isn’t handled by a professional soon. My life has become so isolated and empty I am finding it hard to remain positive. And every day managing a condition that is debilitating with a job that is both physical and mental - has been difficult. I have done my best, but my work has suffered - not only am I taking on less but I have a constant fear that something will happen during a booking that is completely outside of my control and the guilt and fear is becoming all too much.
So, I am here to ask for some help. To go private.
I can’t afford this on my own, but it really is the only way forward now to get this fixed and handled professionally and to get my life back and Winter Woods back to being the glorious creature I loved so much. I have created some options on my throne and a fund raising option - they will be for the things listed below. I have also created a personal official crowdfunder which I will only be giving out to those I know well and can trust. Please contact me for a link to this! There is no other path forward now, as without going private I will lose everything and possibly even myself. I have reached a point where I genuinely can’t dig myself out of this. Whatever has happened to my brain this year has culminated in my lowest point.
Please see my outline of costs below
Private Clinic Initial Assessment - £220 - £390
Follow Up Appointments - £130 - £250
Potential Treatments - £120 - £800
You can find these options on my Throne > Here!
There is so much I want for my life, and so many more dates I wish to go on. But I need you to help make that happen. I am currently walking around each day with a lit fuse in my head that is triggered off by any combination of every day things, like walking, reading, conversing -breathing it seems. And have no support family or otherwise that I can go to. It’s been five months of hell that has ruined my life. I need it to end and I need to get my life back as soon as possible. I am financially underwater, emotionally depleted and so very tired. Even if you can only help in a small way, it would mean everything. This is me in a very vulnerable place right now and I don’t know what else to do, but this - I’m out of answers and just need this to conclude somehow. I won’t leave this blog up for long as it’s taking a lot for me to post this, however with the dire situation and i’m all out of my fight with the NHS of begging them to help me, I am throwing my last bit of effort into attempting to get the help to go private as it’s the only path I can see ahead of me that leads me out of this nightmare and back into the light.
With love, always and
Thank you,
Winter Woods x
